Advice from preemie adults
Hello. I’m hoping this post is allowed. I’m 26 and my daughter was born 25 weeks and 5 days. I know all the medical interventions she’ll need but I’m wanting to know from those of you who’ve gone through it what the best support/help you had? I’ve read a bunch of your posts and saw that ADHD (which runs in my family anyways), depression, and a feeling of not belonging is common. Many said they’re not able to relate to others, make friends, or date. My daughter had a level 3 bilateral brain bleed and hydrocephalus. She is still in the NICU (we’re going into our 5th month because she’s got a heart procedure and feeding to work through still). Let me know how I can help her as she grows. I’m heartbroken I can’t take her discomfort and pain away. I just want to give her the best opportunities at happiness as I can. I still feel like a baby myself, I’m so so so scared.
I know this forum isn’t for those of us still in the NICU but this is the only forum that isn’t from the perspective of parents. I wanna hear from the babies and what your experiences were.