Tortuous optic nerves, partially empty sella and OP 21: IIH ?
New neurologist caught tortuous optic nerves in my brain MRI, and said since my OP was 21 during my last LP (while I was already doing 125mg/day Diamox for sometime), she thinks I have IIH. Wants to repeat the LP in a few weeks.
I am confused as hell. Been to 10+ neurologists with different theory and diagnosis for positive/ negative IIH.
Why the hell is it to tough to get a diagnosis ? Anyone been through this ?
Diamox 125mg/ day helps me only for 2-3 days. Never takes away the pressure completely. If I increase the dosage, it takes away my tolerance to do much or lift weights. Back of my head gets sore and achy all the time. I can barely function.
prior to starting Diamox, I had my 1st LP and my OP was 18. Because I had some relief I was put on a trial of Diamox.
my vision tests always came back negative of IIH. No paps/ optic nerve issues that were caught during these exams