do you feel like something "triggered" your eds?

hi all! so my whole life i have had some joint issues but nothing as debilitating as it is now. i have/had issues writing, it would cause lots of pain because i felt i never had a stable enough grip on things because of hypermobility in my hands. i had knee issues and jaw issues throughout middle school and high school. i did have a note to excuse me from running in gym during school because it made my knees hurt too much. had to wear compression gloves when crafting. the weird "growing pains", but all of it felt mostly manageable.

last year i had a surgery (diagnostic laparoscopic), and then had complications from the surgery, i got multiple blood clots in my lungs and part of my lung tissue died and i was hospitalized for a few days. after that my pain was so much worse, especially in my shoulders and i never really had shoulder issues. since then it's felt like an uphill battle and i am not making any progress of getting better. i had to leave my job, i was a software developer and just keeping my arms up to type hurt so much. i also developed gastroparesis and POTS. i was hopeful that i was just having a weird side effect from the blood thinners but i stopped those after 3 months and still feel terrible.

so i just wanted to know if other people had similar things? have you always had debilitating EDS symptoms? did you just have minor symptoms like the growing pains? did something cause your EDS to get a lot worse?

i know people can have EDS and live essentially a normal life, we suspect my older sister also has it since she's extremely bendy and has other characteristics but luckily no pain.