Medications and Treatments

I want to share which medications and treatments have worked for me so far. My main symptoms: PEM, vertigo, migraines Infection was in Feb 2024. Long hauling since April 2024.

LDN: Went from staying in bed most of the day to resting 2-3 times. 5k - 6k steps a day.

LDA (low dose Ablify): Fatigue got better: Walking 6k to 7k steps a day. I'm able to meet friends for coffee. I couldn't do that before because of the overstimulation. LDA has improved my sensitivity to noises and light extremely. I'm able to read without getting dizzy now, but I still get tired. I still need to rest once a day. I usually do breathing exercises or meditate.

I use my vns "pulsetto" every day because it calms down my nervous system. It cleared my neck pain too. And it improves my headaches.

My doctor prescribed memantine next and I hope I will improve further. I will post an update in a couple of weeks.

I know everybody's suffering differently, but maybe some of the treatments work for others too.