Update from today

I know nobody asked for an update but ima give one anyways.

The doctor appointment went okay. He needs to get a series of shots in his tummy and take an iron medication twice a day under his surgery day February 10th. They have to cut open his scalp completely, saw apart his skull, reshape a few bones then somehow put it all back together and sewn up. He's only 6 😥 I cried most of the way home. It was up in the air on what exactly was going to happen but he's not in a good percentage so they have to do 100% of it. Insurance is fighting them on the injections which are needed to reduce his chances of needing a blood infusion.

Im not asking for anything but support. My husband has shut himself out of all of this so I am dealing with it 100% on my own. If I even try to talk about it, it sends him into panic attacks and he gets angry. I am scared and cry myself to sleep over this and have no one to talk to. I'm strong in front of my son and even have him a little excited cause he will stop getting headaches and nightmares and will just feel better since it will relieve his high brain pressure and give his brain more space but I am terrified and plagued with thoughts of losing him. It took me nearly 10 minutes just to write this out without mistakes. I've already cried my hardest earlier and feel tired mostly.

His mom is too old, my parents are typical Gen X parents that we talk to once or twice a year. We live 3 hours away from any family and that's just his mom. My family is 19 hours away in another state. I'm a stay at home mom and we just moved to this area in March. I have no friends to speak to

A few of you have been so kind to me so I just wanted to share to update. I unfortunately won't be getting to participate for a few months as we deal with medical bills and transportation costs. I was really hoping to gift each month this year but that will have to be next years goal. Thanks for reading so far 🫶 I feel a tad bit better just saying it(or typing it) outloud. ❤️‍🩹