Diagnosed last week and feeling ignored

I’m sorry for the long story time ahead but I can’t stop thinking about it and I am starting to feel annoying to the people that are close to me.

So, this last December I ended up in the ER with abdominal pain and overall just feeling unwell. It turns out I had a 8cm cyst in my right ovary that got addressed as the issue and to schedule a follow up with an OBGYN. I was very concerned since it was so big and I had never had a cyst before that I have been aware of so of course my mind was going 1000 miles an hour, especially being in so much pain.

Well, I just had my follow up ultrasound last Wednesday and during my appointment, the technologist said it looks like I have PCOS. Which I was really struggling with WHY she would even say that without consulting with the doctor first, knowing every woman’s brain is going to freak out at that fact. I work in radiology in a different department here and I know techs aren’t supposed to “diagnose” or say anything concerning to patients as they are not doctors. Of course I cried my whole way home as one of my biggest fears is infertility issues.

I have always known something was off “down there” since I hit puberty. Always have weird symptoms, irregular periods, pains, fatigue, etc. Not to mention, my paps always come back abnormal and my blood sugar has been high on blood tests for YEARS. Guess what? No one has ever cared to look into it for me.

The results were posted Thursday evening basically saying some stuff is still abnormal, I won’t go into full details and that I have PCOS due to the bunches of small cysts in both ovaries now. It wasn’t reviewed by my doctor’s care team until today. After patiently waiting on some mildly concerning results, I SOMEHOW… don’t ask me HOW…. Get a “Everything looks normal and the right ovarian cyst we were concerned about doesn’t seem to be present.” message on my chart from my doctor. Not even a phone call. Which first of all, that makes no sense to me considering the size of my ovary STILL… if we were just still talking about that one cyst.

Anyway, are we just going to ignore the PCOS diagnosis at the bottom or??? Genuinely confused and disappointed. I’m happy I am finally getting some answers to my symptoms but I’ve been seeing so many people complaining about doctors just completely disregarding PCOS.

What helped you guys when you were first diagnosed? I am overly sensitive but I am feeling beat down and I know it’s really going to screw with my already pretty bad mental health.