Short Gut
My son had an ostomy on his bowel since he was born at 30 weeks , when he got the surgery for the ostomy his small intestines were in a ball unable to untangle . they think he twisted it in my belly . So fast forward to 7 weeks later they went in for an exploratory surgery hopefully to bring his small intestine out if it was healed and looking better . He went for surgery yesterday and they said his small bowel has disintegrated from no blood flow . He now has a G tube and central line in his chest . They talked to me about him having to be on the transplant list but i would have to go from kentucky to a whole different state for the specialist & he cannot get a transplant until he is 1 year old . this is so much for me out of no where and i feel so guilty like its my fault . has anyone else had a baby with short gut ? any happy story’s to help me feel a little better cause im very scared & this is my first baby i wish everything could be different for him .
My son had an ostomy on his bowel since he was born at 30 weeks , when he got the surgery for the ostomy his small intestines were in a ball unable to untangle . they think he twisted it in my belly . So fast forward to 7 weeks later they went in for an exploratory surgery hopefully to bring his small intestine out if it was healed and looking better . He went for surgery yesterday and they said his small bowel has disintegrated from no blood flow . He now has a G tube and central line in his chest . They talked to me about him having to be on the transplant list but i would have to go from kentucky to a whole different state for the specialist & he cannot get a transplant until he is 1 year old . this is so much for me out of no where and i feel so guilty like its my fault . has anyone else had a baby with short gut ? any happy story’s to help me feel a little better cause im very scared & this is my first baby i wish everything could be different for him .