Clinic day

Yesterday I had my second clinic day and received some difficult news. Unfortunately I am progressing more rapidly than anticipated and am being asked to consider a trach due to my PFT results showing a significant decline (38 % to 17 % in three months). I’m weighing all of my options and what that will look like for my family and I. My main reason for considering it is to be able to spend more time with my 3 year old son and husband. I’m not ready to say goodbye 🥺

Those who have chosen a trach, is it worth it? Do you feel you have a decent quality of life? I understand this is a very personal choice.